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for and by young people with HIV
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support
When you first hear that you are HIV positive, that can be a heavy blow. There may be a lot of questions running through your head. What kind of impact is this going to have on my life? How long am I still going to be able to live in good health? How are people going to react if they find out? Who can I tell? Having contact with other young people with HIV can be nice: to talk about living with HIV, but also to be in a situation where you have the feeling that you don't have so much to explain.
If you do not have a residence permit, you may need support in terms of getting access to care.
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support after the diagnosis
For most people, it is a huge challenge to come to terms with this diagnosis and to give it a place in their day-to-day lives. It is important to deal with it at your own pace and to give yourself plenty of time for doing that.
People tend to react in very different ways after hearing that they are HIV positive. It could be that you simply don't want to think about the possible consequences at first. You would rather just continue living your life as if nothing has changed. This is a normal reaction if you have received such bad news. It could also be that you will take direct action to find out more about HIV and living with HIV. You might start thinking about the possible consequences it could have in terms of how you live your life, and you might look for support.
Everyone is faced with questions about the medical aspects. It can help to talk about your diagnosis and any feelings and questions that concern you with someone you can confide in. Who that might be can vary from person to person. It could be your partner, your doctor, a good friend, or your medical social worker. At the AIDS Reference Centres in Belgium or the HIV Treatment Centres in the Netherlands, they can also help you notify your partner(s), if you should want that. They can also help you contact any ex-partners, who may well be HIV positive, just like you, but without knowing it, so that they can get themselves tested too. Obviously that would be done anonymously.
You can also look for contact with other people who are HIV positive. Some, like you, have only recently heard that they are HIV positive. Others have already been living with the virus for years and have learned to give it a place in their lives. Other people experience very many of the same feelings, thoughts and anxieties in the same way. Recognising this common experience can be a source of extra strength for you in coming to terms with your HIV.
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David, 26 years
Four years ago we went to see the doctor together. We didn't go for an HIV-test, but decided to have one done do afterall. We always practiced safe sex in our relationship, but it looked to us like a good idea to have a check-up. Thus we both had our blood drawn to see if all
was well. One week later we both cheerfully returned, albeit a little nervous. The doctor said to me, "You have a problem, you are sero-positive." We sat there together to hear what we both received. And there we both cried together. Luckily we were well-counselled by the doctor.
Read another personal story:
Monique, 30 years
You can find more information about living with HIV on: hivnet.org, (in Dutch)
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support and contact with other people with HIV
The Netherlands
Jongpositief, the youth section of Hiv Vereniging Nederland (HVN), organises a number of different activities throughout the year for young people with HIV between the ages of 18 and 30. See the calendar. In addition, HVN itself also organises a wide variety of activities. You can find a schedule for the activities of the HVN on the website: hivnet.org, (in Dutch).
Belgium - Flanders
Sensoa organises all kinds of activities in Flanders. You can find the schedule and a brief description of the activities (in Dutch) in Sensoa Positief or on the website: sensoa.be, (click on 'leven met hiv' - 'ons aanbodkalender', in Dutch).
Belgium - the Walloon provinces
'Aide Info Sida' offers support to French speakers in Belgium. You can find more information (in French) on their website aideinfosida.be.
If you are a migrant or refugee in the Walloon provinces, you can turn to Siréas, Le Service International de Recherche, d'Education et d'Action Sociale asbl. You can find more information (in French) on: sireas.be/prevention_sida.
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support in getting access to healthcare
The Netherlands
If you are living in the Netherlands illegally, it will be especially difficult for you to be eligible for good healthcare. Since the Benefit Entitlement (Residence Status) Act (known as the Koppelingswet) went into effect in 1998, it has become more difficult for people who are living in the Netherlands without legal residency papers to gain access to the Dutch healthcare system. Illegal aliens are also excluded from the collective services. Nevertheless, you should be aware that you always have the right to care that is medically necessary, and you may not be refused such care. It is always best to make an appointment first with a family doctor. He or she can always refer you to a more specialised doctor. There are various arrangements that ensure that medical bills will be paid if people are truly unable to pay their own bills.
Family doctors and others who provide primary care to people who have no legal status can appeal to the Koppelingsfonds (Health Financial Safety Net), a fund administered by Stichting Koppeling. Individuals (illegal aliens) do not have access to this fund themselves.
All hospital budgets contain an item called 'irrecoverable debts' or 'poor credit risks'. Any expenses that a hospital runs up for helping those who are illegal or uninsured are booked under this item. The client can obtain any prescribed HIV medication through a special form delivered by the pharmacist. The pharmacists, in turn, will be reimbursed through the Koppelingsfonds.
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applying for a residence permit
The Netherlands
It also could be that you want to stay in the Netherlands on account of your HIV status, because returning to your own country is not an option for you. This might be, for example, because you cannot get any HIV treatment in your own country or because you think you will be discriminated due to your HIV status. You may want to apply for a residence permit for the Netherlands for that reason.
For information about access to healthcare for people with HIV who are living in the Netherlands, you can turn to the Servicepunt of Hiv Vereniging Nederland, telephone number: +31(0)20 689 2577.
Belgium
The laws about the right to medical care for people without legal residency are complex. A few of the basic rules are mentioned below. It is not possible for illegal residents to be covered by the national health insurance, except in the following situations:
- If you live together with your spouse (husband or wife) who is eligible for coverage and who is in fact covered by the national health insurance.
- If you are a child (= under the age of 25) and living under the charge (through descent, adoption or support) of someone who is eligible for coverage and who is in fact covered by the national health insurance.
- If you are (illegally) employed under legal circumstances: for example if you had been allowed to work on the basis of an earlier residency document and your employer is still paying social insurance premiums for you.
- If you continue to have insurance coverage for a certain period (the so-called uitlooprecht) on the basis of your earlier legal status because the hospital took your earlier legal residency status as a basis for fulfilling all its obligations for the following year; for example, if you had national health insurance on the basis of an earlier residency document (note: such cases are extremely rare).
- If you have a right to medical assistance. In that case, it is not necessary to recover the medical costs by means of the 'Royal Decree concerning the Urgent Medical Care for illegal residents' (K.B. Dringende Medische Hulp).
asylum seekers who requested asylum after
3 January 2001
If the asylum seeker is living in a reception centre, this centre must arrange for a consultation with a doctor and bear the costs.
If the asylum seeker is living outside of the assigned reception centre, he or she will in principle need to contact the reception centre in advance.
- Either the centre has given permission in advance and will give the asylum seeker an 'agreement of payment' statement (also called a 'requisition' or a medical card)
- Or no permission has been obtained in advance, in which case the asylum seeker must quickly notify the centre and send them the invoice as soon as possible. The centre will decide - after checking the matter - whether they will agree to pay for these medical costs.
If urgent medical services are required due to unforeseen circumstances, there is a possible exception to this rule about eligibility.
asylum seekers who requested asylum before
3 January 2001
Those people who applied for asylum before 3 January 2001 and were assigned to a particular Public Centre for Social Welfare (OCMW) are advised to first ask this OCMW which rule applies to them and - if possible - to request to receive an 'agreement to pay' statement before the medical care is given. If that does not happen, the OCMW will need to be notified as quickly as possible about the care received, and the invoice will also need to be sent to the OCMW. If urgent medical services are required due to unforeseen circumstances, there is a possible exception to this rule of eligibility.
The Royal Decree concerning the provision of urgent medical care to illegal aliens (12.12.1996) was issued at the instigation of Colla (who was the Minister of Public Health and Pensions at the time), supplemental to the organic law for OCMWs (8.07.1976). Urgent medical care is understood to be: 'care of an exclusively medical character, the urgency of which must be demonstrated by means of a medical certificate; this care can be given both to ambulant patients as well as to those in a nursing facility; the urgent medical care provided can include both preventive and curative care.'
Only a doctor can assess the urgent character of medical care. 'Urgent' also includes any medical care that is necessary for preventing medical situations that are dangerous for the person in question or for those around him or her.
The medical costs are carried by the state by way of the OCMWs. The proof required for that purpose is a medical certificate that states the urgency of the care provided. The addition of the words 'urgent medical care' on the certificate for the help given is considered sufficient proof.
For specific information about a particular case, you are advised to contact an OCMW or Medimmigrant.
Gaucheretstraat 164, 1030 Brussel
Tel: +32(0)2 274-1433 / 34 (Mon. and Fri. from 10 am until 1 pm and Tues. from 2 pm until 6 pm)
Fax: +32(0) 2 274 14 48
E-mail: info@medimmigrant.be.
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anonymous
When I came to Belgium from Burundi I came to live with a Belgian. I came on a short-term visa. That was a little less than three and a half years ago and I didn't know yet that I was HIV-positive. We (my boyfriend and I) had tried everything to lengthen my stay in Belgium. While waiting for the determination on my status, we took an HIV test. A fortnight later, the doctor informed my boyfriend that I was positive and that he was negative. Happily he stood by my side. At the end of the month my request to lengthen my stay was rejected. I had to return to my country and to apply for a long term visa. We addressed the issue of my health but still my application was denied. I was informed that I should seek medical care in the country of my origin through the help of aid organisations. What they didn't realise, is that when one is informed of such news one really needs some moral support. My boyfriend has accepted it as no one else has. In my country, before I knew I was HIV positive, I had a negative view of HIV positive people and AIDS patients.
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